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ECRD 2024 SESSIONS

SESSION TITLE

[PARALLEL SESSION] National Plans: exchanging best practices to forge a unified European response to rare disease

 

DATE & TIME

Thursday, May 16, 2024, 2:00 PM - 3:30 PM

 

Description

SESSION LOCATION IN BRUSSELS: HALL 300

Speakers
Victoria Hedley Victoria Hedley - Newcastle University Institute of Translational and Clinical Research
Anne-Sophie Lapointe Anne-Sophie Lapointe - Ministère du travail, de la santé et des solidarités
Jean-Philippe Plançon Jean-Philippe Plançon - Alliance Maladies Rares
Antoni Montserrat Moliner Antoni Montserrat Moliner - ALAN Maladies Rares Luxembourg
Annalisa Maddalena Scopinaro Annalisa Maddalena Scopinaro - UNIAMO Federazione Italiana Malattie Rare APS
Giovanni Paolo Latella Giovanni Paolo Latella - Ministero della salute
Francesca Poloni Francesca Poloni - Direction de la santé - Ministère de la Santé et de la Sécurité sociale
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